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Miles S

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miless
About Me

Hi! My name is Miles, and I am almost 20 years old. I was born with a rare condition called 13q deletion syndrome, which affects my life in many different ways. I also have cerebral palsey, epilepsy, and Reynaud's Phenomenon, which are all because of my syndrome.


Throughout my life, I have had many surgeries and medical challenges. I can't speak, so communication is also a challenge. But I work very hard, and I am always very happy, no matter what happens.

I have many relatives and friends that care about me, but getting gifts for my birthday or Christmas can be challenging. I love to do things, and I live to go, go GO! Unfortunately, several years ago I started having problems with walking due to my syndrome and CP, and I have had to have many surgeries to try and keep me mobile and independent for awhile longer. If I didn't have these surgeries, I would have to spend my life in a wheelchair.

Since my surgeries, I have done very well, but I need to get stronger. I like to walk, but can't go really far without getting tired. I had a special needs tricycle that I used to ride, but I outgrew it. My mom and dad saw this tandem bicycle, and knew it would be fun for me to ride with them. If I get this bicycle, I can GO!, build up my muscles, and spend time with them too!

I love doing things and going places, and I love trains, fans, light switches, music, Wall-E, and Ryder from Paw Patrol. I can read, and I like math and science. I have two best friends... Ricky and Alexis, that go to school with me. I have come so far, and my future looks bright!

Dear friends and family,

From time to time, we get a request from someone as to what would be a good gift for Miles. As he is somewhat difficult to buy for, we have decided to set up a Kiddie Pool account with AdaptiveMall.com to save up for a tandem bicycle, which would not only be enjoyable for him, but also be beneficial to his health. As you may know, special needs equipment can be very expensive, and this fund will enable us to eventually meet our goal of getting this bicycle for him, and provide those of you who have no idea of what to get him a way to help him get a gift that he will enjoy for years to come.

Please feel free to check the bicycle out by clicking the "My Need" tab and clicking on the photo of the bike. If you have any questions, please let us know. 

Thanks, Ed and Shelley Schubert 

Fun Facts
Fun Facts about Miles!My favorite school subjects are...Music and Reading. I love to sing and hum!!My favorite hobbies are... Traveling, listening to my Ipod, hanging out with my mom and dad, playing with my fans.
My Need

My Physical Therapist recommends that I get a Excursion Tandem bicycle. This bike provides the support I need with specific accessories to allow me to ride around and enjoy the outdoors!



Pool Rules

*Kiddie Pool Donations are like gift certificates. They can only be redeemed for product or credit on account with Adaptivemall.com. They cannot be refunded.

*An excess of funds might be in the child’s Kiddie Pool when the goal is reached. If this occurs, no refunds will be given. The funds may be used towards additional merchandise.

*The Kiddie Pool goal is based on the product and accessories current price at the time the Kiddie Pool is established and that price are guaranteed for twelve months. Actual order total is subject to change based on additional accessories chosen, size changes or price changes set by each manufacturer after twelve months. If a price increase has occurred, you have two options:

1. Increase the goal amount
2. Put acquired funds on credit with Adaptivemall.com for later use

*After the goal is met and before your order is placed, Adaptivemall.com will verify sizing with our staff therapists.

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