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The Kiddie Pool… Help Change Lillian’s Life

Item# lillianp
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About Me

June 27, 2010 Lilly had her first Tonic-Clonic seizure. We had just arrived at my parent’s house. This was 24 hours after her 6 month vaccines. She went from giggling and clapping to being stiff, shaking violently, & barely breathing in a matter of seconds. It was terrifying. I remember kneeling next to my 6 mo. old daughter, seeing her eyes rolled back in her head, unresponsive and holding her hand, telling her to breathe. I was screaming & begging for God to save my baby.

The paramedics arrived within minutes and Lilly continued to seize all the way to Cincinnati Children's Hospital. Her seizure lasted roughly 25 minutes that day. The doctors did MRI's, a spinal tap, blood work, you name it. They tested for it. They kept us for a few days to monitor Lilly. She had no more seizures while we were there & they let us go home. They told us that everyone is allowed to have 1 seizure in their life with out being diagnosed & put on medication.

Less than a week later Lilly had another intense seizure, lasting nearly 20 minutes! After a long stay at Cincinnati Children's Hospital and many tests they diagnosed Lilly with having a, "General Seizure Disorder". They don't know why she started having seizures. She baffled them. We've tried different medications & combo of meds. They either worked at keeping the seizures at bay for a short while or they made Lilly completely groggy to where she couldn't function daily.

These disabilities are a big part of our lives and we've accepted that. We are just hoping you can help us give her a safer & better quality of life for Lilly. We know that all it takes is ONE seizure and it could take our baby girl from us forever. There have been many times during her seizures that she's stopped breathing for minutes at a time. Moments we will never forget. For the time in between these moments, I want to build happy memories with our family and give her the best chance at a happy life.

We count our blessings each day for the time we've had with her. Now, nearly 3 1/2 years later we are still battling the disorders & disabilities and will do so the rest of her life. To add to her aggressive seizure disorder she suffers from a severe mood swings where she becomes a danger to herself, lack of coordination, she is non verbal, severe constipation, muscle weakness, low muscle tone & she is globally delayed. Across the board she has a 10-12 month olds development.

Her daily struggles are walking, talking, using fine motor skills, using gross motor skills, seizures, mental & emotional instability (there are often times she's a danger to herself as a by product of her psychiatric disorder. Due to her delays she has no perception of action & consequence & depends on medications to provide her with a peaceful nights sleep. We've spoke with her neurology team, children's social worker, psychiatry team, & many of her nurses. They have suggested we pursue trying to get her the following equipment through you guys.

All it takes is ONE tonic-clonic (gran mal) seizure and it could take our baby from us forever. We can not let that happen. We will do everything in our power to help her survive the attacks from the, "seizure monster". That’s what we call them. I want & need to giver her best quality of life possible. We can't do this alone. We need your help desperately and I'm begging you for you to support and pray for my daughter.

Her neurologist has confirmed that Lilly will never be seizure free but our goal is to get her down to less than 3 a month. The kind of seizures she has are the Mother of all seizures! Tonic-Clonic seizures can & have caused long term brain damage or worse, death. Because of Lilly's seizure disorder she is globally delayed. She has developmentally half her age since the seizures began due to brain damages she incurred.

Lilly needs you. We need you.

Thank you from the bottom of our hearts for taking time to support and pray for Lilly.

Hugs,

Tiffany

Lilly’s Mom


Kiddie Pool Donations

**Donation graphs will update within one to two business days of donation.

Fun Facts

Fun facts about Lillian P.

Her favorite color is...Purple

Her favorite hobby is...finger painting, jumping, eating and laughing!

My Need

My Physical Therapist recommends that I get a Bug Seat Stroller. This provides the support I need with specific accessories to allow me to get around more easily.



Pool Rules

*Kiddie Pool Donations are like gift certificates. They can only be redeemed for product or credit on account with Adaptivemall.com. They cannot be refunded.

*An excess of funds might be in the child’s Kiddie Pool when the goal is reached. If this occurs, no refunds will be given. The funds may be used towards additional merchandise.

*The Kiddie Pool goal is based on the product and accessories current price at the time the Kiddie Pool is established and that price are guaranteed for twelve months. Actual order total is subject to change based on additional accessories chosen, size changes or price changes set by each manufacturer after twelve months. If a price increase has occurred, you have two options:

1. Increase the goal amount
2. Put acquired funds on credit with Adaptivemall.com for later use

*After the goal is met and before your order is placed, Adaptivemall.com will verify sizing with our staff therapists.
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