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Madeleine E

Item
madeleinee
About Me

HI! My name is Madeleine but most people call me Maddie. I am 8 years old and have a rare genetic disorder called Miller-Dieker syndrome. It is a form of lissencephaly (which literally translates to smooth brain). This means that the cortex of my brain did not fully develop. Because of this, I have very limited control over motor functions so I cannot walk or talk. I cannot hold on to anything so I have to have a grownup do most everything for me (and big people never seem to know what I want).

Even though I cannot do things that other little girls can do, I still like to do exciting things. I love being outside and going fast. When my mommy swings me I love to go real high (it makes me laugh and laugh). When I was smaller, my daddy used to throw me up in the air and catch me. I would giggle and giggle when he did this. One of the few things that I can do by myself is to rock in my rocking chair. If I kick my feet real hard I can rock back and forth for hours (I really do have abs of steel).

Unfortunately, I have outgrown my rocker and need a new one. My mommy and daddy are saving money so they can buy me one that fits and is made for little girls like me. They are also saving up to buy me a new special stroller so that we can go on long walks in the parks and woods again. (I can_t wait to look for squirrels and bunnies running and playing).

Thank you to everyone who helped me get my stroller! If you would like to help me get a new rocking chair you can; just follow the simple instructions on this page. When there is enough saved they will surprise me with it. I can't wait!

Fun Facts
Fun facts about Madeleine E.

Her favorite color is...Aqua Blue

Her favorite hobby is...Horseback Riding

Her favorite community event is...Water Skiing
My Need

I would love a Leckey Pal with the Rocker Stabilizer Accessory Kit. It's perfect for me!


Pool Rules

*Kiddie Pool Donations are like gift certificates. They can only be redeemed for product or credit on account with Adaptivemall.com. They cannot be refunded.

*An excess of funds might be in the child’s Kiddie Pool when the goal is reached. If this occurs, no refunds will be given. The funds may be used towards additional merchandise.

*The Kiddie Pool goal is based on the product and accessories current price at the time the Kiddie Pool is established and that price are guaranteed for twelve months. Actual order total is subject to change based on additional accessories chosen, size changes or price changes set by each manufacturer after twelve months. If a price increase has occurred, you have two options:

1. Increase the goal amount
2. Put acquired funds on credit with Adaptivemall.com for later use

*After the goal is met and before your order is placed, Adaptivemall.com will verify sizing with our staff therapists.

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